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Senator Markey leads $60 million ME/CFS Letter

URGENT ACTION ALERT: SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

“Chronic neurological problems [like ME/CFS] have been tied to other types of coronaviruses in the past…We must really look hard, particularly with these types of coronaviruses, for chronic effects that are in the neurological category.”
– Dr. Mady Hornig, Associate Professor of Epidemiology at the Columbia University Mailman School of Public Health

Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate is currently circulating our request to include ME/CFS research funding in the next COVID-19 package.
Ask your Senator to sign-on to this effort today!

Our champion, Senator Ed Markey, is leading our initiative to include ME/CFS research funding in future COVID-19 response legislation. If successful, this request would bolster ME/CFS research at the National Institutes of Health (NIH) by including an additional $60 million for expanded research opportunities looking at connections between ME/CFS and COVID-19 survivors.

It is essential that as many Senators as possible join this action in a united voice to call for increased funding for post-viral-disease research into ME/CFS.

Please contact your Senators TODAY and ask them to ask them to sign-on to this effort.

Use the form below to send a message to your SENATORS to urge their support.

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Hello -

I am writing to ask the Senator to co-sign a letter currently being circulated by Senator Markey. This letter supports increased funding for post-viral-disease research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) as a part of COVID-19 response.

As you may know, ME/CFS is a debilitating, predominantly post-viral chronic disease currently afflicting up to 2.5 million Americans of all ages and walks of life.

Historically, viral outbreaks have triggered an increase in ME/CFS patients, and the current coronavirus disease pandemic is likely to do so as well. Some researchers are predicting up to 10% of COVID-19 survivors will later experience ME/CFS.

Research shows that rapid diagnosis and appropriate treatment early in the course of ME/CFS can vastly improve outcomes for those affected by this debilitating disease. We therefore must quickly maximize the ability to properly diagnose and treat post-COVID-19 patients with ME/CFS-like symptoms.

As a constituent impacted by this devastating illness, I am very concerned about the effects COVID-19 will have on the ME/CFS community. I believe Senator Markey's request is a critical first step to address this upcoming health crisis and improve the health outcomes of those who were infected by COVID-19.

To view the letter text, please visit:  https://solvecfs.org/wp-content/uploads/2020/05/COVID-19-ME.CFS-Markey-Letter-Support.pdf

To add the Senator to this letter, please contact Brianna Battle in the office of Senator Markey at: Brianna_Battle@markey.senate.gov

With your office’s leadership, COVID-19 survivors will hopefully avoid a lifetime of disability caused by ME/CFS.

Thank you,

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